Halo Day 6 (Post spinal fuse)

I am overwhelmed to be at this point.  I am so, so, so very thankful that each day from here on out should get easier and towards health.  Titus is sleeping/watching a movie right now after the longest day of surgery ever.  He went to surgery at 7:30am and didn’t get back to our room until about 10pm.  He is amazing and so, so tough.  I am also amazing and so, so tough, along with my husband.  We’ve also had so much help from friends and family.  Collectively, we’ve got this.

So, they had a super hard time getting Titus intubated for surgery.  Due to that, his lips, mouth, and throat are really sore.  The surgery itself went about as well as Dr. Sayama expected.  He woke up surprisingly well and right away wanted a popsicle (that’s my kid – food first).  The incision in the back of his neck and his back (where they removed a hunk of rib) are doing really well.  His pain level currently is low.  His first vertebrae was small and thin, which was no surprise.  Our doctor was able to fuse C1 and C2 (which we hoped).  Now, to keep the pain managed, to get a good nights sleep, to get up and moving tomorrow, and heading toward the long term goal of bone fusion.